March92012
Everything’s getting to me today.
I hate Friday’s. I was exactly like this 2 weeks ago.

Everything’s getting to me today.

I hate Friday’s. I was exactly like this 2 weeks ago.

(via residente-di-rapture-deactivate)

2PM
When did I become one of those people who had to take so many different meds?!

Today’s a really bad day emotionally… Physically the pain’s at a relative low, only my thumbs and right shoulder are hurting.But I’m fed up of not being able to have alcohol when I want it. I’m fed up of having to have regimented eating habits to be able to take the pills, and regimented bed time to be able to take pills to help me sleep and all this bullshit.
IT’S ALL JUST BULLSHIT. 

When did I become one of those people who had to take so many different meds?!

Today’s a really bad day emotionally… Physically the pain’s at a relative low, only my thumbs and right shoulder are hurting.
But I’m fed up of not being able to have alcohol when I want it. I’m fed up of having to have regimented eating habits to be able to take the pills, and regimented bed time to be able to take pills to help me sleep and all this bullshit.

IT’S ALL JUST BULLSHIT. 

(Source: under-the-sea420)

March52012
I went to Pilates this evening.
Spent the whole time feeling like my shoulders were going to pop out, and my hip was grinding and slipping in the socket… And my right knee tried to dislocate.

I was told Pilates was supposed to be good for me - it’s supposed to help me manage this pain better. Instead it’s making it worse. Wtf.So frustrated in general with it right now. Would quite like it to all just stop and go away. 

11 days until my heart echo which’ll hopefully mean they’ll make my diagnoses official instead of “well we’re confident it’s this but…” Yay.

I went to Pilates this evening.

Spent the whole time feeling like my shoulders were going to pop out, and my hip was grinding and slipping in the socket… And my right knee tried to dislocate.

I was told Pilates was supposed to be good for me - it’s supposed to help me manage this pain better. Instead it’s making it worse. Wtf.
So frustrated in general with it right now. Would quite like it to all just stop and go away. 

11 days until my heart echo which’ll hopefully mean they’ll make my diagnoses official instead of “well we’re confident it’s this but…” Yay.

5PM
As a society, we need to get past this thinking and actually realise it is what it is.

As a society, we need to get past this thinking and actually realise it is what it is.

(Source: , via ameliacarolpape-deactivated2013)

5PM
March12012

Life couldn’t actually be much better

Literally, the only thing that stops things being perfect is this goddamn Ehlers-Danlos Syndrome. If they could go ahead and cure that for me, that’d be grand.

But then I feel bad for whinging, because I know I haven’t got it half as bad as some of the other people with EDS have it…..

February272012

I’ve hammered the shit out of my body this weekend.

And my god am I paying for it today.

My back, my hip and my shoulder all are killing me. Every time I move my shoulder it’s cracking, clicking and popping. My fingers have gone numb on that side.
Argh, this is just another bad day where I’m going to be trapped in the house all by myself. And I’ve got stuff that I’m supposed to be going out and doing.

Fuck my body, fuck this disease. 

February242012
Haha, yes.
ehlersdanloszebra:

EHLERS DANLOS ZEBRA
TOP: “YOU’RE TOO YOUNG TO HAVE THAT PROBLEM!” BOTTOM: “THANKS, I’LL LET MY DISEASE”
Submitted by munchflower

Haha, yes.

ehlersdanloszebra:

EHLERS DANLOS ZEBRA

TOP: “YOU’RE TOO YOUNG TO HAVE THAT PROBLEM!” BOTTOM: “THANKS, I’LL LET MY DISEASE”

Submitted by munchflower

11AM
Ahh, this is basically story of my life.

ehlersdanloszebra:

EHLERS DANLOS ZEBRA
TOP:”HAVE GOOD DAY” BOTTOM:”DO TOO MUCH, SPEND NEXT WEEK IN BED”
Submitted by kerchuck.

Ahh, this is basically story of my life.

ehlersdanloszebra:

EHLERS DANLOS ZEBRA

TOP:”HAVE GOOD DAY” BOTTOM:”DO TOO MUCH, SPEND NEXT WEEK IN BED”

Submitted by kerchuck.

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