Life is not about how many breaths we take.
Life is about how many moments take our breath away.
Literally, the only thing that stops things being perfect is this goddamn Ehlers-Danlos Syndrome. If they could go ahead and cure that for me, that’d be grand.
But then I feel bad for whinging, because I know I haven’t got it half as bad as some of the other people with EDS have it…..
And my god am I paying for it today.
My back, my hip and my shoulder all are killing me. Every time I move my shoulder it’s cracking, clicking and popping. My fingers have gone numb on that side.
Argh, this is just another bad day where I’m going to be trapped in the house all by myself. And I’ve got stuff that I’m supposed to be going out and doing.
Fuck my body, fuck this disease.