March52012
I went to Pilates this evening. Spent the whole time feeling like my shoulders were going to pop out, and my hip was grinding and slipping in the socket… And my right knee tried to dislocate. I was told Pilates was supposed to be good for me - it’s supposed to help me manage this pain better. Instead it’s making it worse. Wtf.So frustrated in general with it right now. Would quite like it to all just stop and go away.  11 days until my heart echo which’ll hopefully mean they’ll make my diagnoses official instead of “well we’re confident it’s this but…” Yay.

I went to Pilates this evening.

Spent the whole time feeling like my shoulders were going to pop out, and my hip was grinding and slipping in the socket… And my right knee tried to dislocate.

I was told Pilates was supposed to be good for me - it’s supposed to help me manage this pain better. Instead it’s making it worse. Wtf.
So frustrated in general with it right now. Would quite like it to all just stop and go away. 

11 days until my heart echo which’ll hopefully mean they’ll make my diagnoses official instead of “well we’re confident it’s this but…” Yay.

pilates ehlers danlos EDS 

5PM
As a society, we need to get past this thinking and actually realise it is what it is.

As a society, we need to get past this thinking and actually realise it is what it is.

(Source: , via ameliacarolpape)

ehlers danlos EDS 

5PM

(Source: passionate-purple-pineapple, via ameliacarolpape)

ehlers danlos EDS postsecret 

March12012

Life couldn’t actually be much better

Literally, the only thing that stops things being perfect is this goddamn Ehlers-Danlos Syndrome. If they could go ahead and cure that for me, that’d be grand.

But then I feel bad for whinging, because I know I haven’t got it half as bad as some of the other people with EDS have it…..

EDS ehlers danlos Happy 

February272012

I’ve hammered the shit out of my body this weekend.

And my god am I paying for it today.

My back, my hip and my shoulder all are killing me. Every time I move my shoulder it’s cracking, clicking and popping. My fingers have gone numb on that side.
Argh, this is just another bad day where I’m going to be trapped in the house all by myself. And I’ve got stuff that I’m supposed to be going out and doing.

Fuck my body, fuck this disease. 

EDS ehlers danlos Rant 

February242012
Haha, yes. ehlersdanloszebra: EHLERS DANLOS ZEBRA TOP: “YOU’RE TOO YOUNG TO HAVE THAT PROBLEM!” BOTTOM: “THANKS, I’LL LET MY DISEASE” Submitted by munchflower

Haha, yes.

ehlersdanloszebra:

EHLERS DANLOS ZEBRA

TOP: “YOU’RE TOO YOUNG TO HAVE THAT PROBLEM!” BOTTOM: “THANKS, I’LL LET MY DISEASE”

Submitted by munchflower

Ehlers Danlos EDS Hypermobility 

11AM
Ahh, this is basically story of my life. ehlersdanloszebra: EHLERS DANLOS ZEBRA TOP:”HAVE GOOD DAY” BOTTOM:”DO TOO MUCH, SPEND NEXT WEEK IN BED” Submitted by kerchuck.

Ahh, this is basically story of my life.

ehlersdanloszebra:

EHLERS DANLOS ZEBRA

TOP:”HAVE GOOD DAY” BOTTOM:”DO TOO MUCH, SPEND NEXT WEEK IN BED”

Submitted by kerchuck.

ehlers danlos eds hypermobility 

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